Rett's syndrome is a debilitating disorder which affects girls. Holistic approach is the best way to treat Rett's syndrome. Alternative therapies give better results in treating Rett's syndrome.
Rett’s syndrome is a disorder of the nervous system which
leads to developmental reversals, particularly in the areas of hand use and
expressive language. Rett’s
syndrome is a severe and rare form of autism which affects girls only. This
disorder comes to light normally in the first two years of a child’s life.
There is no cure for this type of autism. However, early intervention and
treatment can help children cope with this disorder to some extent.
Tips for Treating
Here are some tips for coping and managing Rett’s Syndrome
Nutrition - The
first thing that parents of a child suffering from this syndrome must do it to
seek the advice of a nutritionist. For such children a healthy diet capable of
managing weight gain issues is preferable. Since muscle loss is one of the symptoms
of this syndrome it is essential that the child has foods which help tone the
-To help the child gain control over her balance, movement skills and ensure
shapely development of arms and legs physical therapy is beneficial. However,
it is important to seek guidance from a qualified therapist while treating such
Motor Skill Therapy
skill therapists specialise in helping a child improve her communication
skills. In certain extreme cases of Rett’s Syndrome a child may not speak at
all. Motor skill therapist will assist both the child and the parents or
caregivers in the art of communicating without speaking. Needless to say this
skill will be very handy in the social development of the child also.
Therapy for Control
Over Hand Movements - Most children suffering from this syndrome normally
have problems in coordinating their hand movements. In fact loss of hand
movement or control over hands is quite common in these children. Therapy for
the child to regain control over her hand movements is very useful to make her
accomplish tasks with hands once again.
Surgery - Surgery
is often required in children who have spinal issues. In many cases it becomes
a necessity to make a child use her legs and walk again.
Each family and every child suffering from this syndrome is
different. Making friends with and staying in touch with other families facing
the same problems can be of great help to the parents and caregivers. There is
plenty of help available online too which can provide guidance and support to
these families. Connecting with others can be a source of encouragement to the
parents of a child suffering from this disorder.
Treating Rett’s syndrome requires a holistic approach. A
team of specialists in medical care, physical, occupational and speech
therapy will all be normally required to ensure all round development of a
child. Unlike normal children, children with this disorder require help and
support throughout their lives.
for Rett’s Syndrome
In addition to conventional treatment a number of
alternative therapies are also used in treating children with Rett’s syndrome.
Many of these therapies have been tried and found to be useful in improving the
quality of a child’s life. Alternative therapies which can be used for treating
Rett’s syndrome include:
- Hydrotherapy- to improve body movement by swimming or
moving in water
- Myopfascial release- for loosening stiff muscles and
joints this a very effective massage therapy
- Yoga practices done under the guidance and
supervision of an expert is beneficial to improve flexibility in such
- Horse riding and swimming with dolphins
To summarise treatment for the disorder is symptomatic.
Managing its symptoms requires a holistic approach. One or more therapies may
be required to be used in addition to medication to get relief from some of the
symptoms of this condition.