Spina Bifida is a congenital disorder (birth defect) where the backbone
and spinal canal do not close before birth. This allows the spinal cord and
the covering membranes to protrude out of the child's back.

Protrusion of the spinal cord and meninges damages the spinal cord and
nerve  roots, causing a decrease or lack of function of body areas controlled at or below the defect.  Most defects occur in the lower lumbar or sacral areas of the back (the lowest areas of the back) because this area is normally the last part of the spine to close. Symptoms include partial or complete paralysis of the legs, with corresponding partial or complete lack of  sensation, and may include loss of bladder or bowel control. The exposed spinal cord is susceptible to infection (meningitis).

Symptoms  visible sac like protrusion on the mid to lower back of the new
born. Weakness of the hip, leg or feet of a newborn. tuft of hair at the
sacral area (back part of the pelvis)or dimpling of the sacrum.

The parents of these children have to face the ordeal without any support or  proper guidance. They need help at every step in bringing up an
extraordinary child with special needs. We at Indian Spina Bifida
Association aim to give moral support and latest information in the field
of  medicine. A common  platform in the form of bulletin board is present at the site where all members are connected to each other even when they are  thousands of miles away. The members are free to give suggestions and actively participate in the activity of the Association. It is not
necessary  for the members to disclose their identity.
 

Our Objectives

1. Enhance and improve the quality of life of all affected with spina
 bifida.

2. To give mutual and emotional support and help in all the possible ways.

3. To develop contacts and communication between parents.

4. To provide a common place for parents to share there experiences and
doubts.

5. To provide information in the field of research and medicine.

6. To provide optimism and encouragement for parents and children.

7. To promote the prevention of Spina Bifida by primary prevention and
developing awareness among people.

8. To create a medium where qualified professionals can give their
opinions and advice.

In India very little work has been done in this area. This led to the
formation of Indian Spina Bifida Association. It is a sincere effort of a
parent to work for the benefit of all who are affected with SPINA BIFIDA.

Families with a child who has spina bifida have special concerns and often
need a great deal of information: information about the disability and
other related problems of their child, about school services, therapy, local
policies, funding sources, transportation, medical facilities, and much
more. Parents will find it very useful to join ISBA, where they can meet
other families with similar needs. ISBA can serve many purposes, but
primarily they offer parents a place and a means to share information,
give and receive emotional support, and work as a team to address common concerns.

Let us come forward and help each other towards a better future for our
children.

For Membership: 
Please Email at:
care@indianspinabifidaassociation.org

or write to

Vinita Jindel
G - 14, Krishna marg,
C'Scheme,
Jaipur - 302001
INDIA