Have you screened your newborn for any disorders? Do you think newborn screening is necessary? Do you think it should be made mandatory? vikas replied. i got to know abt it recently and got it done for my niece who is 7 months old. her urine sample was collcted on specialized filter papers and was sent to lab, received report in just 3 days time. mohammad sharaf replied. Mr vikram, there more than 100 disorders which can be diagnosed at present using simple test. and these disorders are very rare. in my family we had no history of genetic sort of abnormality or condition, and we were complacent to do genetic screening, which later proved fatal to my brothers baby. nobody including his doc didnt encourage to screen his baby. nor were we aware of newborn screening. after 32 days of babys birth health condition deteriorated and he left the world. now my bro and his wife is trying for second child and they are guided by some counselors from Preventine life care. lets pray for the best to my bro Mahima Alam replied. Very sorry for loss of your child. was browsing once on newborn screening and found people engaged actively in facebook promoting newborn screening. perhaps u can share ur ideas so that a life is saved and no tears on mothers eyes. Jany Robert replied. Its really very bad happened with you.I will pray to GOD for your happiness.I have seen a site about secure pregnancy.Hope this will help you.
How to get pregnant
sunaina replied. cant say in india NBS program wil b mandated or nt . but plz as of now plz mail ur members about this. though its expensive but plz mail ur al registred members bout this.

i lost my baby bz of galatosemia 1month back.he was jsut 47days old. no one mailed me frm this site n suggested me bout this.

im very unluck n i didnt kw much bout this.

best of luck al would b parents . Nihal George replied. The incidence rate for these disorders is virtually unknown in India as babies have never been screened in the past, but it is estimated that 1 in 1000 babies will suffer from these treatable disorders. The incidence rate while low, becomes significant when you consider 27 million babies born in India every year. It could happen to anyone which is why every baby born in most Western countries. In India, Goa is the only state which screen every baby born in government facilities. Most premium hospitals also screen all babies delivered by them.
Kadir M replied. If the US has made it mandatory, what exactly is stopping our government from making it mandatory too??? I' m sure the stats of india have higher child deaths than the US, and isn' t prevention better than cure?? I got my child screened, but I honestly felt it was too expensive. But yeah, the paranoia finally gets to you and so i gave in and got her screened. The report was detailed and reassuring. It' s just the price I' m not happy with, and our government could change that. Is anybody listening?? Neena replied. are these tests carried out in delhi too?? i havent really heard of newborn screening before and i dont think any of my friends ever opted for it. my sister is expecting a baby, is it possible fr you guys to post some contact center details??? in delhi and NCR preferably... the baby is due in 4 months... VIkram Singh replied. Are such tests absolutely necessary? I mean, it does appear that the chances of your baby contracting such diseases is quite minimal. My own daughter wasn' t screened when she was born, and at that time I was aware of the tests. I just thought that if my child looks so healthy there' s no need to actually get tested for disorders which we have no history of. But that' s my personal opinion, once there' s more information on this, I may change my mind. Me and my wife are planning for a second baby soon....