Parents of Schoolgoers  Discussion Forum

Duchenne Dystrophy is the most common dystrophy that occurs in children and has a sex-linked recessive inheritance. This means it affects boys, and females are carriers of the disease. All the voluntary muscles of the body are involved in the dystrophic process, some more and some less. For example the muscles involved in chewing food are least affected while respiratory muscles are involved late in the disease. Limb girdle muscles are most involved. As life advances these children loose various functions. First, walking is affected, later they find difficulty in rising from sitting posture. Soon they take to the wheel chair. Though their brain functions normally, the muscles slowly keep deteriorating, and pretty soon independent existence becomes impossible. The life span of these children is cut short and they usually die around 16-20 years of age.

In view of the above some like-minded doctors and social workers got together in 1973 and founded Muscular Dystrophy Society. The aim of the society was to give cheer to the afflicted as there is no treatment available. The Society has concentrated on improving their life style, increase their ability to stand and walk for more number of years.

Address

Muscular Dystrophy Society, 2nd floor, Ratnakar, Narayan Dabholkar Road, Mumbai 400 006. (80G income tax exemption certificate available.)

Have you heard about this disease?
Talk about it! Puja replied. Dear Sir, I have an uncle suffering from this disease. He has taken to wheel chair. I found your address on the internet but could not locate your telephone no. so that i could benefit from your society. S, if possible please provide your telephone number at the earliest. Thank you.