Hi all,
Hope you are all doing fine? Had a quick question for you all.. My dr mentioned something about MATERNALEYSTIC FIBROSIS Testing. She said this is some kind of test for lungs, which mostly occurs in Caucasians and says it is very rare in Asians. My question is has anybody gone through this test? For most part this is not covered in insurance and wondering if it really necessary for us to undergo this testing? Dr also mentioned that this test by Govt. rule will be conducted on our new born. Any further details on this testing will be useful..
Thanks,
Rose
Rakhi replied. hi rose,
my doc gave me a small booklet abt CF(cystic fibrosis) and she said its upto u to take the test or not. CF is very rare among asians and many of my frnds here didnt do it. the thing is that even if u AND ur partner r detected as carriers for CF, there is a 25% chance for the child to inherit it. secondly, u cannot do anything abt it..it will just give u an idea that the child may have it. moreover, even if ur test is normal, there cud still be a chance that u r a carrier. if there is no one with any genetic disorder in either of ur families then u cud skip the test.

i' ll type something from the booklet:

possible reasons to be tested-
1. if CF seems like a very serious disorder to u
2. if the chance of being a carrier seems high to u this may be esp likely if a member of ur or ur partner' s family has CF or is a known carrier
3. if u and ur partner wud consider CVS to help u decide abt continuiing the pregnancy or to help u prepare for the birth of a baby with CF
4. bcoz the cost of testing is covered by ur insurance

possible reasons not to be tested-
1. if CF does not seem like a serious disorder to u
2. if the chance of being a carrier seems low ot u this may be esp likely if u r asian or african
3. if u and ur partner wud never consider CVS to help u decide abt terminating the preg or preparing for the birth of a bayb with CF even if u both were found carriers
4. bcoz the test is not perfect and will not identify all carriers
5. bcoz the cost of testing is not covered by ur insurance

HTH
take care
rakhi ira replied. Hi Rose!
thanks for the info! i did' nt even know what that is!! but after reading your post i just googled it.... i am sure u' ve already done that!!

well i read that this testing is offered to all couples in the US and it' s ur decision if u want to get it done..

and it is genetic is' nt it?

i really don' t know if you should get it done.. maybe the other mothers in the US will help you..

as for me.. there is no mention of any such test in my prenatal plan which was given to me by the doc.... so it may not be offered normally in switzerland.

does anyoneo n this board know more abt this testing?
i am sure we' d all like to know!

love
ira Rose replied. Sorry about the wrong spelling in my first message. I was talking about MATERNAL CYSTIC FIBROSIS testing.