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Miscarriage and Child Loss:`20 weeks pregnant with spina bifida baby
2005-07-23
Name: preeti



hi
my day has been rollercoaster ride
first the joy of seeing our little son at the ultrasound appiontment .
everything appeared norrmal with brain,heart bone growth
my afp test was normal
and then dr suspected the spine wasnt closed comletely and gave us the diagnoses
he still cant say how severe it is but its really low end of spine and is closed type but has a sac
i am scared to say the least but cant think clearly
i can take responsiblity to handle whatever disability our son is born with but am i being fair on this child and giving him a life which is a struggle to begin with
my family suggests that everyday is going to be a hell for us and the baby
plaese suggest what to do
thanks in advance
preeti
fremont ,ca
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2005-11-23
#1
Anonymous Name: sonali
Subject:  what to do??



I am in a similar situation, my triple test was slighlty off which had put me at risk for baby with Down Syndrome so I went for 2nd level US which was normal but now I am unable to decide if I want to go for amniocentesis due to risk involved. I am in my 18th week. should I wait for next US at 20th week and then decide. I am not getting any peace at all since I am scared to have a baby with any genetic abnormality
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2005-07-28
#2
Anonymous Name: bindi
Subject:  same here



Hi Preeti,
I am 27 week now after finding the opened abdominal wall at 20 week .I had series of tests done.Waiting for the final Amniocentisis Result to make some decisions. Doctors saying high chances of chromosomal defect.
If Amniocentisis result comes out bad then we might have to make a bad decision. Also after 24 weeks of pregnany most of US states do not permit terminations. Only 2 states 1.Kansas 2.I think Idaho.
Me and my husband are living deadly. This is our first baby.
I would say get all tests done at the earliest as you can.
If there is nothing Doctors can promise you then take the bad decision,
otherwise you have to see your baby suffering ..
I wish you all the best. I will keep you in my prayers ,pray for me tooo..
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2007-04-06
#3
Anonymous Name: ANKITA
Subject:  Howz everything with u?



Hi bindi,
I am new on this board...i don´ t know how to ask you..i don´ t want you to feel bad...but i am in the same boat and i have to do some hard decision...n i just want your help...can you plz help me n let me know how it went with u n ur baby...is everything ok?I hope everything is ok with u?Plz plz don´ t take me wrong n if possible plz help me
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2005-07-24
#4
Anonymous Name: Maya
Subject:  dear preeti



hi preeti,
im so sorry abt the dilemma ur in right now. im a 25 week preg 2nd time mom. and believe me for a mom a baby at 5 weeks, 5 years or 15 years is the same. we bond right from the time they form in r tummy.
u have a tough choice to make. cud u pls get a 2nd opinion in ur case? just to make sure that ur making the right choice. and if the baby indeed has this condition, then my personal advice is there no use putting urself n the to be born baby thru so much torture. technology is here to help us make decisions, stimes harsh. but the end result is to make sure, u have a choice to make in cases like these. bringing up a healthy kid itself is tough these days coz of time, financial probs etc. so a special child wud need more care and time of yours. wud u be able to give all that n yet not regret even on a single day that maybe u shud have not had this kid?
hope ive not confused u further on this preeti. what does ur hubby say? whataver decision u make, be sure u stand by it n never regret it. heres wishing u all the best for your future....
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2005-07-25
#5
Anonymous Name: preeti
Subject:  touching words



daer maya
thanks for yr sisterly advised
we are taking 2 nd opnion at stanford just for our peace of mind
this choice is worse decision for aanyone to make
its so hard to go either way and i wonder if i'll ever heal
thanks for yr kind words
its surprising how we indians believe so much in good karmas and god but still get punishe for reasons unknown
preeti
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