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Miscarriage and Child Loss:Lost my Baby
2004-05-21
Name: vidya rao



Hello everyone... till a week and a half back i was a doing fine expecting in September ... but 10th May changed everything.
I had gone for Anamoly Test of the feotus at the scan centre. The Doctors checked me for an hour and again called me in the evening for recheck. They informed in the morning that due to fetal positions some parts could not be visualized. In the evening they informed me that there was a major anamoly in the heart of the feotus. This is when my feet buckled under me.
We got the report next day. It was a traumatic night and a horrifying experience. The report indicated a Large VSD (Ventricular Septal defect) and possibility of TOF (Tetralogy of Fallot)
We did a 2D echo done in a Heart institute and it was confirmed that large VSD is present in the Feotes along with DORV (Double Outlet Left Ventricule) with PS(Pulmonary stenosis) with subaortic VSD.
The doctors said that it was most complicated and the chances of survival of the baby after birth is minimal.
We came out of the trauma with courage and had to terminate the baby in larger interest of its future. It is one of the worst days and we were totally disappointed. We couldn't bear our feelings and were uncontrollable when we saw our child(Boy) after termination.
We pray to God such experience should not occur to anyone at all.
But from our experience , we wish to inform every one that they should do an anomoly Scan in 20 Weeks in good ultrasound centre and also get second opinion. Our babies future is in our hand and it should not suffer in future.
May God bless everyone.
Vidya
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2004-12-23
#1
Anonymous Name: kittu
Subject:  Sorry...



All

I Just want to share this with you all, as I am not in a position to talk to people around me.
We have a 3 years old daugther and waiting to have one more child. In July we found that I am pregnant and very happy about that. First four months I was miserable with morning sickness but getting along for my baby. I want a boy naturally as first one is a girl and my husband wants a girl as he thinks, sisters will do better in sharing and bonding etc.

We were waiting for our 20 weeks scanning to find the sex of the baby and we didn't think of any thing else.
Since that point we never heard of any abnormalities with unborns in friends or anybody we known. We were so existed that we coudn't sleep that night and the appointment was at 8.30 next morning.

The technician told us everthing looks great and it is a boy. We were very happy, but she stopped at the heart and started taking lot of measurements and doing lot of analysis and she called a radiologist in to the room.
We suspected that some thing is going wrong and thought some minor issues.

The radiologist told us that he couldn't see baby heart properly and he thinks 2 air chambers are not formed well and there is no way for the blood to pass through lungs and many more. We were devastated and praying that this is misunderstanding of this person and everything will be all right. They asked us to come again next morning so that different doctor can do the scanning and he said the same thing. And our OB refered us to other special risk maternity hospital, after 4 days we got the appointment and the doctor spend 2 hours scanning taking measurements and mean time the technician in the room told that our boy is very active and possibly nothing is wrong with him. We can cleary see that baby is playing with toes with his hands. I am so happy to hear those postive words first time in a week and it gave us little hope. But at the end doctor confirmed us that there are more than one problem and the heart seems to be very complicated. And he immediately called perdiatric cardiologist and got the appointment next day morning. We got devestated by these happenings and I want my baby so badly and praying for the last hope. We met the cardiologist next day and she is very sweet lady and she spend lot of time with scanning and doing echos of the heart etc and told us the same thing. Baby has almost 3 heart problems and requires nearly 3 major heart surgeries.One after birth, another at 6 months and another at 3 years. And lifelong he has to be in medication to prevent blood cloting. And he can't be a normal child and will be in restrictions for playing etc. And survival after each operation will be minimum. And also she showed us the pictures of her patients , some of them already died.
At her office we take our decision to terminate the pregnancy. If the baby is born, we will grow lot of affection for him and it will be very difficult to live with those memories once he dies after 1 year or sometime later. Also it will be a big punishment for the baby to go through all these medical things and he may feel bad that he is not a normal child like others.
It was like a bad dream that is happening to us and how much I don't want. And in next day my OB called to set the appointment to terminate the pregnancy. I am a living hell that point onwards. We had no courage to see the baby after he is delivered. And I say goodbye to him within my self and praying and crying for him silently.
Since then I am not taking any calls and not encouraging people to come over express thier sympathies. I am unable to discuss this with anybody else.

I am very sorry for this long message, but I found a place where I can express my feelings without feeling bad about it.
And I am very sorry to hear about your loss and I hope god will do some thing good in future for us.
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2004-12-05
#2
Anonymous Name: Nisha
Subject:  hello



Hi Vidya,

Good advice and also could observe your courage inspite of all these season. to say i got a second time abortion and have lost the hopes in future.

Be brave and you will have a very good and healthy baby... cheer up..
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2004-09-19
#3
Anonymous Name: Anamika
Subject:  Dear Vidya



Sorry to hear about this. I also cried while reading this.You have actually gone through this pain which is something unexplicable. May GOD give you and your family strength.I have been trying this the last 6 yrs and know the urge one feels to have a Baby. May GOD Bless all of us with a Healthy Baby very soon.
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2004-08-25
#4
Anonymous Name: Monu
Subject:  Be Strong !!!



Hi Vidya,
Sorry to hear about your baby. Be strong and be positive for a good future.

Take care !!!
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2004-07-09
#5
Anonymous Name: sejal
Subject:  I'm sorry..



I'm sorry that you had to go through so much suffering...It is horrible...
Just trust in yourself, and I hope you will revocer soon from this experience.
wishing you the best for the future.
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2004-06-25
#6
Anonymous Name: Renuka
Subject:  Very shocked to know of your sad news.



Dear Vidya,

Very sorry to know of the great loss. But have faith in God. Probably, in God's view, it was better for the unborn child to remain in the palm of God's hands than having to live in this world with some problem.

God will surely bless you with your choicest healthy baby very soon.

So look up. When one door closes, several others open. You just have to look for those others that have opened for you.

May the unborn child lay in peace in God's protection.

Take care!

Renuka
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2004-06-24
#7
Anonymous Name: Archie
Subject:  Sorry to hear



Dear Vidya,
It surely is a huge trauma and most difficult moment for you both.
You both handled situation bravely and made a constructive decision that had the best interest for baby.
You could ttc in about 2-3 months. And may God bless you both with bundles of joy soon.
Dealing emotions will be hard. Howevere knowing medical complication and how hard it would have been for that unborn child to make should give you some support and help coming out of this tragic epic.

We have you and your family in prayer. May your unborn little boy get peace.
Sympathetically
Archie
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2004-06-23
#8
Anonymous Name: sripad
Subject:  what exactly is anomoly scan?



We just had our 20 weeks ultrasound done. Dr checked the spine, abdomen, brain, kidney, limbs etc. I checked over the internet for anomoly scan and found similar things which are checked. What exactly is anomoly scan?
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2004-06-06
#9
Anonymous Name: pari
Subject:  have courage



dear vidya,
have courage! i know its hard to cope with such a loss.
i lost my baby at 10 weeks last october. he was due on 25 may,2004. he would have been exactly 14 days old today. the doc told me it was better this way coz the probability was that he would have been born with a chromosomal abnormality...so my body automatically rejected it at 10 weeks. when such a thing happens, we dont see the logic..we only think why it happened to me only...but it has happened to many people and everyone on this board...
a friend of mine also had to terminate her pregnancy due to similar reasons...now she is the mother of a pretty little girl.
the prospect of having more children in future may not comfort u for the one u have already lost...but definitely it is a big hope that ur child may return with ur subsequent pregnancy.
all of us are with u to share ur grief,
love,
pari.
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2004-05-28
#10
Anonymous Name: honey
Subject:  Its all for the best



dear vidya i too had a miscarriage in march. hang in there sweety. the only way to deal with the loss is to realize that your child is in a better place and is happier than he would have been had he been born. May you be blessed with a beautiful healthy child soon.
Honey
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2004-05-23
#11
Anonymous Name: preeth
Subject:  Sorry



Dear Vidya,
Really sorry about this unfortunate news. Thanks for sharing these details with everyone. I pray to God to give you the courage to cope with this loss.

Take care,
Preeth
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2005-08-20
#12
Anonymous Name: ram
Subject:  MY SON ADITYA



I am from Mumbai and my name is Ram my wifes name is Anuradha. My wife conceived 2 months after our mariage in May 2002. Our happiness was the birth of a very handsome boy whom we named Aditya. Aditya was born on 14th Feb 2003 on valentines day. The joy and happiness that we had was incomparable. Aditya was healthy with no symptoms until I and my wife began to doubt that there was something wrong with him. He would not gain weight crawl of turn over. Come jan 2004 our nightmare began when I came back from college where I am teaching mathematics to the Junior college. I take him to his paedatrician who had been looking after him twice sometimes thrice in a month. She could not diagnose what my worst fears were. Jan 16 we conduct a 2d echo and realise that he has just 50% heart. God my world shattered.
When my wife was pregnant in the seond month we got a sonogrpahy done at the best Meidcal Centres in Bandra NM Meidcal center. My wifes gynaec would call us every week for a check up but was unable to pick up this important defect. Sadly even the sonography conducted on Jan 12003 did not pick it up at the same NM medical center in Bandra. The gynac told us everything is fine. My wife goes to home town in Bijapur and even on 14th Feb 2003 on the day he was born another sonography was done even then nothing was detected.
Every report all three said "4 Chambered heart".
My child suffered. When no doctor tocuhed him in Mumbai I landed in Bangalore Narayan Hrudalaya and met Dr Sunita Maheshwari on 19 th Jan2004 where the final diagnosis were as follows
Dextrocardia
TAPVC
Small PDA
Large ASD VSD and
AV canal defect
extremly high lung pressure
How painful it was for me and my wife and my entire family.My son underwent a 4 1/2 hour heart surgery on Feb 26 2004 under Dr Rajesh Sharma( who is gods gift to unfortunate parents like us) and thereafter on March 31 we came back with Aditya to Mumbai.
Then in Sep 2004 there was swelling on the face which later we came to know was because of Valve regurgation.
Now running up down with him to Bangalore he has undergone another major surgeryfor valve repair on 27th July 2005 . This surgery faied and again was reoperated on 30th July 2005 for valve replacement and then agian his lungs were operted upon on 3 August 2005.
When I read Mrs Rao's child history I thought she was lucky not to see the futuristic pain and suffering that her child had to undergo.
I know only one thing that Aditya is gods blessing on us and is a real fighter. He is God's will and will always be my first and last love.
I pray to god that such a thing should never happen to anybody no one.
The child suffering is really very very painful. Its not the money that matters but if god asks me one wish I would say give me Aditya back hale and hearty
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