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Raising Children Topics..

You are here : home > Raising Children > Childhood Concerns > Indian Spina Bifida Association > Comments

Comments:

Name:
Country: India
My 1yr baby suffering frm sbs frm T12 region to L5 region wth absence of corpus callosum. She is very active recognize her relatives n unkown persons... she is not properly holding her head n not speak properly maa papa...... I m worried abt tat can u help me.... tell medical policy n funds organizations.

Name: Anurag
Country: India
I am 16 year old boy and have undergone surgery when I was two months old for spina bifida occulta.but now I am experiencing severe pain in my both legs upto calf muscles.intensity of pain is severe during nights ..I had MRI and CT scan done my report says resultant bilateral severe foraminal narrowing at L5-S1 level.Diffuse posterior bulge of L5-S1 disc.Breaks are seen in bilateral pars intra articularis of L5 with grade 11 to 111 anteriolisthesis of L5 over S1 Marked sclerosis is seen in adjacent end plates of the L5-S1 disc with adjacent osteophytosis.right now I am consulting chiropractor for my condition My question is (1) will my condition improve or worsen with the treatment. (2) I want to avoid surgery what are the other options. First surgery Dr Advice is detethering of the spinal cord Second fixing spondylolisthesis (3) I want to play football .. Please help me becoz I am unable to concentrate on my studies because of pain..

Name: ameera
Country: Pakistan
what is Indian Spina Bifida Association ??? please explain me in simple language

Name: Edelburg
Country: India
I am a mother of a 30yr. daughter who is a English Lietrature graduate and has done computer basics in graphics and as well as DTP. She has been unable to find a suitable job for her and is very much frustrated and spends sleepless nights. How to cope with this.

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Discussion Forum - Recent Posts
Spina Bifida is a congenital disorder (birth defect) where the backbone and spinal canal do not close before birth. This allows the spinal cord and the covering membranes to protrude out of the child's back! We at Indian Spina Bifida Association aim to give moral support and latest information in the field of medicine. Let us come forward and help each other towards a better future for our children. Have you heard about this birth deffect? Talk about it!
adil adil
ya its amazing!...
read reply
kamya kamya
hi ,i have a 9 yr old neice suffering from the same.i would like to know what precautionary measures you take about the bowel and bladder system.it would be a great help.thank you...
read reply
Edelburg Edelburg
I visited your site. I saw him swimming. Very good keep it up. It is a good Hydro therapy.
I am a new member over here, mother of a daughter who is also having spina bifida....
read reply
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