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Baby Issues:Newborn Screening
2009-06-29
Name: Editor Have you screened your newborn for any disorders? Do you think newborn screening is necessary? Do you think it should be made mandatory?
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2010-05-05
#1
Name: vikas
Subject:  important
i got to know abt it recently and got it done for my niece who is 7 months old. her urine sample was collcted on specialized filter papers and was sent to lab, received report in just 3 days time.
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2010-04-29
#2
Name: mohammad sharaf
Subject:  lack of awareness takes toll on ur baby
Mr vikram, there more than 100 disorders which can be diagnosed at present using simple test. and these disorders are very rare. in my family we had no history of genetic sort of abnormality or condition, and we were complacent to do genetic screening, which later proved fatal to my brothers baby. nobody including his doc didnt encourage to screen his baby. nor were we aware of newborn screening. after 32 days of babys birth health condition deteriorated and he left the world. now my bro and his wife is trying for second child and they are guided by some counselors from Preventine life care. lets pray for the best to my bro
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2010-04-29
#3
Name: Mahima Alam
Subject:  share your experience !
Very sorry for loss of your child. was browsing once on newborn screening and found people engaged actively in facebook promoting newborn screening. perhaps u can share ur ideas so that a life is saved and no tears on mothers eyes.
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2010-04-20
#4
Name: Jany Robert
Subject:  Really Sad
Its really very bad happened with you.I will pray to GOD for your happiness.I have seen a site about secure pregnancy.Hope this will help you.
How to get pregnant
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2010-03-04
#5
Name: sunaina
Subject:  mandatory of new screening test!
cant say in india NBS program wil b mandated or nt . but plz as of now plz mail ur members about this. though its expensive but plz mail ur al registred members bout this.

i lost my baby bz of galatosemia 1month back.he was jsut 47days old. no one mailed me frm this site n suggested me bout this.

im very unluck n i didnt kw much bout this.

best of luck al would b parents .
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2010-04-20
#6
Name: Avinash
Subject:  feel sorry
I hope and pray to god that he gives you strength to overcome the grief. Maybe your urge about newborn genetic screening helps many parents. May god bless you.
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2009-08-03
#7
Name: Nihal George
Subject:  Newborn Screening in India
The incidence rate for these disorders is virtually unknown in India as babies have never been screened in the past, but it is estimated that 1 in 1000 babies will suffer from these treatable disorders. The incidence rate while low, becomes significant when you consider 27 million babies born in India every year. It could happen to anyone which is why every baby born in most Western countries. In India, Goa is the only state which screen every baby born in government facilities. Most premium hospitals also screen all babies delivered by them.
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2009-06-30
#8
Name: Kadir M
Subject:  Government apathy
If the US has made it mandatory, what exactly is stopping our government from making it mandatory too??? I' m sure the stats of india have higher child deaths than the US, and isn' t prevention better than cure?? I got my child screened, but I honestly felt it was too expensive. But yeah, the paranoia finally gets to you and so i gave in and got her screened. The report was detailed and reassuring. It' s just the price I' m not happy with, and our government could change that. Is anybody listening??
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2009-08-19
#9
Name: Arvind
Subject:  You are correct
Well Mr. Kadir, You are absolutely right, but its quiet evident that new is the concept of new born screening, i think Supply and demand would explain that. Where did you screen your baby. Can you suggest me some centers.... I have heard a lot about Neogen labs. My doctors has also refered me there. 1 more month to go for me to get to a mile stone of becoming a father. Kindly suggest with details.
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2009-06-30
#10
Name: Neena
Subject:  newborn screening in delhi
are these tests carried out in delhi too?? i havent really heard of newborn screening before and i dont think any of my friends ever opted for it. my sister is expecting a baby, is it possible fr you guys to post some contact center details??? in delhi and NCR preferably... the baby is due in 4 months...
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2010-04-20
#11
Name: Avinash
Subject:  recommendation
pls check about screening with preventine life care, mumbai.
It helped me gain peace of mind. Maybe it helps you too. All the best
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2009-08-19
#12
Name: Arvind
Subject:  contact my Uncle.
Hi Neena,
My uncle is a doctor in Fortis. He is a neonatologist there. you can him up. His name is Dr Mallaiah. If you want his number do let me know. Take good care of your self.
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2009-06-30
#13
Name: VIkram Singh
Subject:  Necessary?
Are such tests absolutely necessary? I mean, it does appear that the chances of your baby contracting such diseases is quite minimal. My own daughter wasn' t screened when she was born, and at that time I was aware of the tests. I just thought that if my child looks so healthy there' s no need to actually get tested for disorders which we have no history of. But that' s my personal opinion, once there' s more information on this, I may change my mind. Me and my wife are planning for a second baby soon....
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2009-08-19
#14
Name: Arvind
Subject:  Its sheer luck
Dear Vikram,
Its a pathetic story all around, that most of us are not aware and are willing to take chances in life. Its good to take risks but not with your baby. We have come accross cases where babies appear normal but do not dont achieve mile stones and when parents come to us, Its too late. Because the screening of IEM´ s require just 1 drop of blood to detect over 40 disorders. Do not take any chances with your babies life, its precious, What if that 1 in 1000 baby would be mine? These disorders are treatable if detected early. Please educate yourself and the society around you the importance of screening of IEM.
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